Breaking Down the Anti-Vaccine Echo Chamber

by |May 8, 2019
Vaccination paperwork

The rhetoric around vaccination is generally black and white: vaccines are good or vaccines are bad. But now more than ever, it’s important to find ways to communicate across the vaccine echo chamber. Photo: Bill Smith/Flickr CC

By Rachel Alter and Tonay Flattum-Riemers

The rhetoric around vaccination is generally black and white: vaccines are good or vaccines are bad. In these days of Facebook and Twitter, it is easy enough to block out the opinions of those you disagree with, and only associate with people whose voices reinforce your own opinions. These echo chambers have real-world implications; currently, the U.S. is in the midst of its largest measles outbreak in decades. That’s why it’s important to find ways to communicate across the divide.

While the overwhelming majority of the scientific and medical communities (including the authors of this article) agree that vaccines are extremely safe and effective, and that the benefits far outweigh the risks, it is important to note that there have been, on rare occasions, events where certain vaccines have been recalled, and there are very rare occasions when anaphylactic events can occur after vaccination. Failing to admit that these events can occur fuels the anti-vaccination community further in their dangerous rhetoric and pushes them deeper into the echo chambers that exacerbate vaccine denialism. It is important for vaccine advocates to stop completely discounting these fears as impossible and to reframe their argument in a way that acknowledges the fears but underscores the importance, efficacy, and safety of vaccination on the whole, despite the risks.

Many who are on the fence about vaccination are worried about the potential consequences of vaccines; they’ve heard stories about children having severe immunologic reactions or dangerously high fevers after their shots; they’re enticed by anecdotes about children who were vaccinated one day and severely impaired the next. Most of these stories come from a misunderstanding of the common scientific axiom, “correlation does not equal causation,” and carry little to no weight in arguments against vaccinating. Many of the stories are also lies fabricated by the most vocal vaccine deniers and profiteers seeking to further their own dangerous agendas.

But every once in a while, a story will carry some legitimacy, and it does vaccine advocates no good to dismiss them as impossible. Instead of outright dismissing the claims, it would benefit the pro-vaccine community to acknowledge that sometimes, albeit rarely, mistakes occur, and to focus on what the scientific community does to ensure safety, how infrequent these events actually are, and how the benefits of vaccines still significantly outweigh the risks. In fact, when mistakes do occur, the products are removed from the market immediately and the kinks are worked out, further evidence that the system works well.

Vaccine advocates should feel comfortable with these conversations and instead of shutting them down; those whose fears are dismissed will look for another outlet to vent their frustration, convinced the medical community and government are engaging in a conspiratorial cover-up, and if they cannot find a place to have a civil discussion about it in an evidence-driven environment, they will often seek confirmation from those whose agendas are nefarious: enter the anti-vax echo chambers.

Many of these echo chambers — like Facebook’s “Vaccine Resistance Movement,” “Vaccine Re-education Discussion Forum,” and “Vaccine Truth Movement” groups, for example — have tens of thousands of followers. Where do they come from? Much of the blame can be placed on profiteers: those who seek to profit off the ignorance and fears of parents and others.

Andrew Wakefield, whose retracted Lancet article claimed there was a link between the MMR vaccine and autism, is a textbook profiteer who intended to profit from his own measles vaccine and treatment, for which he filed a patent application. Even after his medical license was revoked because of fraudulent, unethical methods and conflict of interest, he continues to profit from his hoax. In 2016, he and other big-name anti-vaccine profiteers directed the propagandistic documentary Vaxxed, which makes the same spurious claims as Wakefield’s original Lancet article and raked in almost $1.2 million.

Or consider Larry Cook, who runs a group called Stop Mandatory Vaccination. He has made almost $80,000 from anti-vaccination GoFundMe campaigns, which he freely admits go “directly” to his bank account and “may be used to pay [his] personal bills.”

Profiteers are responsible for gatekeeping many of the staunch anti-vaccine communities found on social media, where anyone who expresses an opinion contrary to theirs is attacked and banned from the group in order to keep the echo chamber as tight as possible. It is through these echo chambers that profiteers continue profiting; they sell their own books and alternative lifestyles and bankroll from GoFundMe campaigns. Any dissenting voice is a threat to their finances, so they encourage intense groupthink and mob mentality.

It is our goal as public health professionals—and should be the goal of every scientifically-minded, pro-evidence person—to keep those on the fence about vaccines as far away from the echo chambers as possible. Foresight is important: understand the commonly used tropes they may use, and know how to combat them with evidence and reason instead of shutting them down.

Unfortunate as it may be, it is on all of us to steer the conversation in the direction science has told us is safe and effective for decades. We must do what we can to prevent the echo chambers from growing.

Alter and Flattum-Riemers are recent graduates from the Mailman School of Public Health at Columbia University. Both are science communicators who focus on vaccine education and manage the vaccine-related content of the March for Science social media pages.

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Margit BurmeisterT KRachel AlterAmanda Recent comment authors
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Thank you for this. It’s the first article I’ve seen that addresses the in-between. There needs to be compassion in these conversations for people who have actually experienced adverse vaccine reactions. There are risks that need to be understood and accepted in order for parents to get on board with vaccination, but the lack of acknowledgement of the very real fear that this involves for some parents, and the shaming of those whose decisions reflect experience that has reasonably taught them to be cautious, sets up a culture of distrust and makes them less likely to get on board, not… Read more »

Rachel Alter
Rachel Alter

Hi Amanda, thanks so much for the reply. I totally understand your reservations, given that your doctor was unable to answer some of your important questions. I strongly encourage you to join this vaccine group, an international, evidence-based forum filled with extremely knowledgable experts including physicians, nurses, scientists, epidemiologists, lawyers, and more. The group requires and enforces civility and for all claims to be backed up with credible evidence, so if you (or anyone else) have any questions at all, it’s a wonderful place to find some answers.


As soon as you cure autism, all this discussion goes away… just go focus on root-causing and curing autism, the true silent epidemic of our time; Cure autism, and all this discussion and mistrust goes away…

Margit Burmeister
Margit Burmeister

Thank you for this! In a March for Science open Facebook discussion, we had a heated debate about this article anyone can look at. Some there argue that nobody is denying vaccines have risk – nonsense, your article was needed! Like others here I feel we are too much in an antivax /provax camp. It feels like Trump or abortion – no middle ground allowed. In my opinion it does not go far enough. In particular, we need to argue numbers. For every anecdote of a kids coming down with horrible symptoms after a vaccine there are kids like the… Read more »

Rachel Alter
Rachel Alter

Hi Margrit, thanks for your reply. To be clear, there is no debate over the safety of vaccines; they are safe, and we know that. What we need to be careful of is saying they never have adverse events, because there are a few, albeit very rare, occasions when they can. Nothing you put in your body is 100% safe– there will always be risks and benefits. In the case of vaccines, the benefits significantly outweigh the risks. But we do need to acknowledge that once in a while, there will be a case worth looking at. Doctors should not… Read more »